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End of Life and People with Intellectual and Developmental Disability

Contemporary Issues, Challenges, Experiences and Practice

Roger J Stancliffe editor Michele Y Wiese editor Philip McCallion editor Mary McCarron editor

Format:Paperback

Publisher:Springer Nature Switzerland AG

Published:12th Jun '23

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End of Life and People with Intellectual and Developmental Disability cover

This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services.


The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience. The book is applicable to readers from the disability field, and mainstream health professionals who assist people with disability in emergency care, palliative care or end-of-life planning

ISBN: 9783030986995

Dimensions: unknown

Weight: unknown

519 pages

1st ed. 2022