Why Can't You Hear Me?
Our Autistic Daughter's Struggle to Be Understood
Andrew McCulloch author Amanda McCulloch author
Format:Paperback
Publisher:Jessica Kingsley Publishers
Published:21st Apr '21
Should be back in stock very soon
This poignant account of Colette McCulloch's life and tragic death underscores the need for better support for autistic individuals and their families.
In Why Can't You Hear Me?, parents Andy and Amanda McCulloch share an intimate account of their daughter Colette's life and tragic death. Colette, who had autism, walked out of her specialist care facility and was struck by a lorry just hours later. This heartbreaking narrative not only recounts the events leading to her untimely passing but also sheds light on the challenges faced by individuals with autism and complex needs. Through their story, the McCullochs emphasize the critical importance of understanding and supporting these individuals.
The book interweaves Colette's original writings, including her poetry and prose, which provide a poignant glimpse into her thoughts and feelings. Her eloquent words illustrate the struggles she faced in a world that often felt alien and unwelcoming. The McCullochs reflect on the years of undiagnosed autism, the battles with eating disorders, and the lack of adequate support that plagued their daughter’s life. This personal narrative serves as a powerful reminder of the systemic failings that can lead to tragic outcomes.
Ultimately, Why Can't You Hear Me? is a call to action, urging society to better understand and accommodate autistic individuals. It leaves readers with a message of hope, envisioning a future where people like Colette can thrive, supported by a compassionate and informed community.
Family's tragic journey with autistic child must be read...The book is a powerful indictment of the agencies and often well-meaning professionals who failed to identify both the basis of Colette's behaviour and her care and support needs. This is a challenging read for all professionals working with children and adults on the autistic spectrum and rightly sits alongside Justice for Laughing Boy in particular as books that should be required reading on social work and adult safeguarding courses.
-- Pete Morgan * Professional Social Work magazine *This poignant memoir of a young women born with autism spectrum disorder is a moving exemplification of the minds of others. Her parents use highly attuned empathy and biographical knowledge with insights from Colette's poetry in a compelling forensic analysis of her tragically short life story. -- Janet Treasure, Professor of Psychiatry, King's College London
This is a breathless and devastating read, capturing the brilliance and intensity of a young woman who lived her shortened life never quite fitting in, all the while documenting her feelings beautifully through her writing and artwork. It is also a story of the strength of family love and in particular parents who both lay witness to and, with unwavering determination, try to ease the struggles their daughter experienced over years.
Colette's brutal and preventable death led the McCulloch's on a new journey in search of answers and accountability. They were forced to negotiate a whole new world of coronial processes, obstruction and the contempt that families in such situations too often face. It is deeply saddening that bereaved families are subjected to consistently hostile and unnecessary treatment.
Why Can't You Hear Me? is, finally, an account of the immense losses that accompany the failing of health, social care and education systems to understand and recognise autism in girls and young women.
I wish I had met Colette. She was clearly a remarkable individual and this book speaks to her character, vivacity and life.
This book is an emotional rallying call for changes in the way we respond to women with autism and mental ill-health. Colette, a talented artist and writer, conveyed her inner torment and needs but was not seen or heard by state agencies. Narrated by her loving family it conveys their fight against a system that failed her, and them, in both life and death. In their pursuit of truth and accountability they have ensured Colette's creative free spirit lives on and we learn from her. -- Deborah Coles, Director, INQ
ISBN: 9781787755086
Dimensions: 214mm x 138mm x 20mm
Weight: 395g
304 pages