Disability Worlds
Exploring disability, advocacy, and community in New York City
Rayna Rapp author Faye Ginsburg author
Format:Paperback
Publisher:Duke University Press
Published:30th Apr '24
Should be back in stock very soon
This paperback is available in another edition too:
- Hardback£90.00(9781478026181)

The book Disability Worlds examines the intersection of disability, advocacy, and community in New York City, offering profound insights into the lives of disabled individuals and their families.
In Disability Worlds, Faye Ginsburg and Rayna Rapp explore two decades of engagement with the diverse disability communities in New York City. As parents, activists, anthropologists, and scholars in disability studies, they provide a rich tapestry of experiences and insights that reflect the complexities of living with disability in contemporary society. Their work situates the lives of their disabled children within a broader context, connecting personal narratives to the struggles for recognition and rights faced by advocates, families, and artists alike.
The authors delve into critical issues such as genetic testing, the challenges of special education, and the transition from high school for disabled youth. They emphasize how disability consciousness arises in everyday political interactions and societal practices. Ginsburg and Rapp also shine a light on the vibrant movements within neurodiversity activism and disability arts, illustrating the dynamic culture and politics that contribute to a more inclusive society.
Disability Worlds ultimately serves as a testament to the resilience and creativity of disabled individuals and their allies, highlighting both the obstacles and the innovative solutions that emerge in the ongoing quest for disability justice. Through conversations with a diverse array of New Yorkers, the authors reveal the bureaucratic challenges and paradoxes that have arisen in the wake of the disability rights movement, while celebrating the remarkable efforts to forge pathways toward a more equitable future.
“Disability Worlds is a remarkable book, and the world will be a better place for it. It is like nothing else in the disability studies canon. Faye Ginsburg and Rayna Rapp are already major figures in the field, standing for decades at the still-too-sparsely-trafficked crossroads of disability studies and anthropology, and this book will become a standard reference point.” -- Michael Bérubé, author of * Life as Jamie Knows It: An Exceptional Child Grows Up *
“Having already forged disability studies and disability-inclusive practices within anthropology, Faye Ginsburg and Rayna Rapp author a powerful new theoretical framework for understanding the multiple institutional and cultural dynamics of ableism. Looking beyond the past, the book also evokes disability futures in beautifully rendered ethnographies of scholars, artists, and activists who are leading efforts at disability reworlding. I cannot imagine teaching my medical anthropology course again without Disability Worlds.” -- Carolyn M. Rouse, Professor of Anthropology, Princeton University
"From disabled choreographers and filmmakers to access activists to scholars across a dizzying spread of fields, GInsburg and Rapp know everyone and have read everything. The thoroughness and generosity of their scholarship is breathtaking. I can imagine no better introduction to the anthropology of disability, disability studies, or the state of play in the quest for disability justice in New York and beyond." -- Danilyn Rutherford * Reviews in Anthropology *
". . . an astute telling of the worlds of disability within a particular city. It adds nuance to our understanding of disability over time due to its approach, something that is of value to geographers. The deeply personal narrative that is threaded by Ginsburg and Rapp shows that disability worlds are personal projects, kinship-shaping, and life-defining, with the potential to create more just, accessible, and enduring disability futures." -- Jamie Arathoon * AAG Review of Books *
"Disability Worlds is an extraordinary book. It stands out particularly as an ethnography that cites liberally and generously from the broader interdisciplinary field of disability studies. . . . Ginsburg and Rapp’s oeuvre is a detailed and meticulous account of—specifically—American disability worlds, primarily in New York City, which is in some ways an exceptional place. Readers searching for a guide to understanding contemporary disability formations in the US would be hard-pressed to find a more extensive exposition. But what other kinds of disability worlds exist elsewhere? May this book be read as a clarion call for anthropologists to document the multitude of disability worlds out there beyond Euro-America, providing insight into those differences that make us human."
-- Timothy Y. Loh * American Ethnologist *
ISBN: 9781478030409
Dimensions: unknown
Weight: 386g
288 pages