Locked-in Syndrome after Brain Damage

Living within my head

Barbara Wilson author Paul Allen author Anita Rose author Veronika Kubickova author

Format:Paperback

Publisher:Taylor & Francis Ltd

Published:25th Jul '18

Currently unavailable, and unfortunately no date known when it will be back

This paperback is available in another edition too:

Locked-in Syndrome after Brain Damage cover

The newest title in the series Survivor Stories, this book tells the story of Paul Allen, a photographer who likes opera and was a good baritone singer. At the age of 56 he sustained a stroke that left him paralysed and speechless. He has Locked-In Syndrome (LIS), a rare consequence of brain damage. Although Paul is fully conscious and his cognitive abilities are intact, he is unable to move or speak due to the paralysis of nearly all his voluntary muscles. However, Paul is keen to communicate and through his eye movements he tells his story, from his early life, career, singing and other interests, to the details of his stroke and the effects it has had on his life. The book also includes contributions from Paul’s wife Liz, who tells the story from her point of view, along with Paul’s physiotherapists, occupational therapists, speech therapists, psychologists and others from the Raphael Hospital who have assisted in Paul’s rehabilitation. In telling of his frustrations, his successes, his views on life and how he sees his future, Paul raises awareness of the quality of life possible for those with LIS.

Combining scientific knowledge with personal narrative, this unique and optimistic book is of huge importance to any professional involved in the care of someone with a brain injury, and to the individuals and families touched by LIS.

ISBN: 9781138700406

Dimensions: unknown

Weight: 130g

94 pages