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Embodied Narratives

Protecting Identity Interests through Ethical Governance of Bioinformation

Emily Postan author

Format:Hardback

Publisher:Cambridge University Press

Published:14th Jul '22

Currently unavailable, and unfortunately no date known when it will be back

This hardback is available in another edition too:

Embodied Narratives cover

Explains the ethical imperative to take seriously the potential impacts on our identities of encountering bioinformation about ourselves.

Increasing quantities of information about our health, bodies, and biological relationships are being generated by health technologies, research, and surveillance. This escalation presents challenges to us all when it comes to deciding how to manage this information and what should be disclosed to the very people it describes. This book establishes the ethical imperative to take seriously the potential impacts on our identities of encountering bioinformation about ourselves. Emily Postan argues that identity interests in accessing personal bioinformation are currently under-protected in law and often linked to problematic bio-essentialist assumptions. Drawing on a picture of identity constructed through embodied self-narratives, and examples of people's encounters with diverse kinds of information, Postan addresses these gaps. This book provides a robust account of the source, scope, and ethical significance of our identity-related interests in accessing – and not accessing – bioinformation about ourselves, and the need for disclosure practices to respond appropriately. This title is also available as Open Access on Cambridge Core.

'… this book has something to offer everyone who is interested in narrative identity, the ethics of accessing personal bioinformation, or both.' David DeGrazia, Bioethics

ISBN: 9781108483742

Dimensions: 235mm x 158mm x 23mm

Weight: 610g

250 pages