Genetics, Disability and the Law

This insightful book explores the urgent need for a regulatory framework on genetic information at the EU level, addressing ethical and legal concerns.

This book presents a thorough investigation into the necessity of establishing an EU-level framework to regulate genetic information. Genetics, Disability and the Law is particularly valuable for legal and medical scholars, practitioners, and anyone interested in the implications of genetic testing. It serves as a crucial reference for policymakers and contributes significantly to ongoing law reform and legislative initiatives.

As advancements in science and technology continue to unfold, it is essential to recognize both the benefits and potential harms they may bring. Rapid developments in genetic testing exemplify this duality, as new indicators can now aid in the detection, treatment, and management of diseases. However, Aisling de Paor's study highlights the concerning trend of using genetic testing for non-medical purposes, such as employment opportunities and insurance coverage, raising ethical and legal questions.

Genetics, Disability and the Law stands out as the first comprehensive work to address the need for a substantive EU-level response to the use of genetic information. De Paor explores strategies to foster the growth of genetic and scientific research, enhance public trust, and ensure that such advancements align with fundamental human rights and societal values. This timely examination of an understudied yet critical topic makes a significant contribution to the discourse surrounding disability rights and genetic regulation.