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Blossoming Into Disability Culture Following Traumatic Brain Injury

The Lotus Arising

Dee Phyllis Genetti author

Format:Paperback

Publisher:Taylor & Francis Ltd

Published:12th Jan '24

Currently unavailable, and unfortunately no date known when it will be back

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Blossoming Into Disability Culture Following Traumatic Brain Injury cover

This book tells the author’s story of her ten-year journey of recovery and identity transformation from Traumatic Brain Injury (TBI). Dr. Dee is a survivor who regained the ability to articulate what many TBI survivors cannot, and this powerful account, provided in real-time, portrays the many seemingly unrelatable symptoms of brain injury and subsequent post-traumatic stress disorder (PTSD). Dr. Dee portrays how events pushed her beyond her limits and resulted in life-altering learning experiences, revealing a process of first figuring out how to live, then making meaning of her struggle.

When half-way through her PhD program, Dr. Dee was crashed into by a car travelling at 65 miles per hour. She suffered a TBI. She lost her ability to read and write. She had a severe speech impediment and significantly impaired memory. Her journey of recovery, described in the book as her trek, spans four significant periods. The road begins with the loss of most of herself. Diagnosis and evolving symptoms show her broken pathway. The author goes through a rocky road of changes in her relationships and reidentification of herself as she finds her life coach, re-learns to read and write, and deals with mental health issues that felt like the end of her recovery. The final trek reveals hope and posttraumatic growth (PTG) and showcases the value of Disability Culture as a source of pride.

This story is for fellow TBI survivors, their caretakers, families and friends, and professionals in the neurorehabilitation field. It brings light to the daunting changes after TBI and give hope for all who tread on this challenging path.

“The most striking aspect of Dee’s recovery has been how far she has come from the days when she struggled to hold a two-minute NPR news clip in her memory to now completing her doctoral degree. Her singular will and determination have driven her recovery and reset our equations for what is possible after traumatic brain injury.”

– R. Richard Sanders, M.S.CCC, M.T.S. Senior Speech Language Pathology Clinical Specialist at Spaulding Rehabilitation Hospital in Charlestown MA.

ISBN: 9781032550022

Dimensions: unknown

Weight: 408g

212 pages