Ethical Issues in Governing Biobanks

'This volume is a "must-read" for anyone interested in biobanks, bringing together both theoretical perspectives and empirical data to shed clear light on the sometimes confusing issues of terminology, and identifying where consensus exists regarding ethics and regulation in this important area of scientific development.' Ruth Chadwick, Cardiff University, UK 'Ethical Issues in Governing Biobanks provides valuable evidence of widespread academic concern about ethical issues associated with biobanks.' Journal of the American Medical Association '[This] book provides a comprehensive overview of unresolved ethical disputes in the literature and of conflicting national and international guidelines. Even more useful, much of the book is based on an international qualitative study of the ethical opinions of bioethicists, biobank managers, medical researchers and clinicians.' Monash Bioethics Review 'The strength of the book is the rich and detailed exploration of the moral reasoning concerning a large number of controversial issues surrounding the development of new biobanks and the maintenance of existing biobanks... The authors have managed to present their material in a very lively, compelling fashion... I strongly recommend this book to anyone who is interested in the topic of biobanks and who would like to understand more of the complicated discussions concerning them.' Genomics, Society and Policy