Protecting Data Privacy in Health Services Research

Institute of Medicine author Division of Health Care Services author Committee on the Role of Institutional Review Boards in Health Services Research Data Privacy Protection author

Format:Paperback

Publisher:National Academies Press

Published:13th Jan '01

Currently unavailable, and unfortunately no date known when it will be back

Protecting Data Privacy in Health Services Research cover

The need for quality improvement and for cost saving are driving both individual choices and health system dynamics. The health services research that we need to support informed choices depends on access to data, but at the same time, individual privacy and patient-health care provider confidentiality must be protected.

Table of Contents
  • Front Matter
  • Executive Summary
  • 1 Introduction
  • 2 Human Subjects Protection and Health Services Research in Federal Regulations
  • 3 Best Practices for IRB Review of Health Services Research Subject to Federal Regulations
  • 4 Best Practices for IRB or Other Review Board Oversight of Health Services Research Not Necessarily Subject to Federal Regulations
  • 5 Recommendations for Next Steps
  • References
  • Acronyms and Abbreviations
  • Appendix A Study Activities
  • Appendix B Institutional Review Boards and Health Services Research Data Privacy: A Workshop Summary
  • Appendix C Protecting the Health Services Research Data of Minors
  • Appendix D Confidentiality of Health Information: International Comparative Approaches
  • Appendix E Biographical Sketches
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ISBN: 9780309071871

Dimensions: unknown

Weight: unknown

208 pages