Palliative Care in Amyotrophic Lateral Sclerosis

This book provides essential guidance for health and social care professionals in managing Amyotrophic Lateral Sclerosis. It emphasizes comprehensive palliative care, addressing patient and family needs from diagnosis through bereavement.

Palliative Care in Amyotrophic Lateral Sclerosis is a comprehensive resource aimed at health and social care professionals involved in the management of Amyotrophic Lateral Sclerosis (ALS), a progressive neurodegenerative disease. This book highlights the significant impact ALS has not only on patients but also on their caregivers and families. It emphasizes the importance of maintaining a high standard of care and enhancing the quality of life for everyone affected by the disease.

The text outlines the necessity of integrating palliative care into the treatment plan from the moment of diagnosis, rather than solely focusing on the terminal phase. It discusses symptom management and the psychosocial aspects of care, ensuring that both the patient and their family receive comprehensive support throughout the disease's progression. The multidisciplinary approach, involving both palliative care and neurology teams, is presented as essential for effective management and care delivery.

Additionally, the book incorporates case studies to illustrate the complex care needs of ALS patients and their families, culminating in discussions about bereavement. It explores various care models and updates its content based on the latest research and guidelines, including topics such as complementary therapies and genetic studies. This new edition serves as an essential guide for professionals seeking to provide compassionate and effective palliative care to individuals living with ALS, ensuring they receive the support they need at every stage of their journey.