Achieving Justice in Genomic Translation
Re-Thinking the Pathway to Benefit
Sara Goering editor Wylie Burke editor Kelly A Edwards editor Suzanne Holland editor Susan Brown Trinidad editor
Format:Hardback
Publisher:Oxford University Press Inc
Published:13th Oct '11
Currently unavailable, and unfortunately no date known when it will be back
This book explores implicit choices made by researchers, policy makers, and funders regarding who benefits from society's investment in health research. The authors focus specifically on genetic research and examine whether such research tends to reduce or exacerbate existing health disparities. Using case examples to illustrate the issues, the authors trace the path of genetics research from discovery, through development and delivery, to health outcomes. Topics include breast cancer screening and treatment, autism research, pharmacogenetics, prenatal testing, newborn screening, and youth suicide prevention. Each chapter emphasizes the societal context of genetic research and illustrates how science might change if attention were paid to the needs of marginalized populations. Written by experts in genetics, health, and philosophy, this book argues that the scientific enterprise has a responsibility to respond to community needs to assure that research innovations achieve much needed health impacts.
The topics the book covers represent a pantheon of issues relating to genetic translation, from the political underpinnings to the historic uses of newborn screenings. The chapters covering prenatal and neonatal screenings are especially well done ^b Doody's Listings
ISBN: 9780195390384
Dimensions: 236mm x 157mm x 20mm
Weight: 476g
224 pages